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Mayo Clinic, the hospital and tests...OH MY!!!

Sarah made her first visit to the Mayo Clinic yesterday to get new opinions on her vision problems that have resulted from her tumor and brain surgery back in March. Here is what I know so far. She saw Dr. Shelly Cross, in Neurology. Both Sarah and Nate (my SIL) liked her a great deal, felt she had a great bedside manner, was very thorough, etc. She spent hours with them and has Sarah set up for a lot of consults over the next two weeks. So, Sarah will stay here with us (YAY!!!!!!!!!!) until Halloween. Nate will have to head back to Indiana on Friday to get back to work on the house addition he is building. I will take her to the rest of her appointments next week.

Dr. Cross was not pleased with the records Sarah had from her previous neuro-surgeon and neuro-opthalmologist, saying they were filled with double-talk and inconclusive results, which led her to be suspicious and question them. She sent Sarah yesterday for a specialized MRI of some sort, to focus specifically on the eyes and optic nerves and how they are all connected to the brain. And here is the kicker. The doctor wants to see if there was an error made during Sarah's surgery that is being covered up, because otherwise her vision should have returned. Oh my word. How sad. I don't know if I am more sad now or angry. My poor baby girl.

She is going to re-do the pathology on Sarah's tumor to make sure that was done correctly and has her scheduled to see a neuro-opthalmologist, a low-vision specialist and a neuro-surgeon today. The neurologist wants them to go over Sarah's case step-by-step to see what has happened to her. It certainly sounds to me like it could get interesting. She is also scheduled to see a psychologist to see how she is handling all of this emotionally, a gastroenterologist to check further into her stomach problems that have gone on for years now, and an oncologist to discuss options for the future should her tumor return and need further steps taken. (The tumor was benign, but if they see it trying to return, it would be taken care of with either radiation or additional surgery.) I can't remember who else she has to see. There may be more

As I know more, I will let you know but PLEASE keep all of this in your prayers as we move forward to see what, if anything, can be done for my darling child. And if any of you ever have serious health issues, I can't speak highly enough of the Mayo Clinic in Rochester, MN. I have gone there for years, and especially in cases like Sarah's, they will be more thorough than you can imagine. And if there are answers to be found, they won't stop until they find them for you.

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Comment by Linda Richards/N. Ontario on October 22, 2009 at 7:26pm
Mary, I will be praying for you and Sarah as you head into these appointments and more testing. May God give the Drs. the wisdom they need and may they find the problem that Sarah may be able to see again. May God give you both the strength you need to face tomorrow. Only He knows what it holds but He holds us in the hollow of His hand.
Comment by Pam/NY on October 22, 2009 at 3:30pm
Prayers sent...You're in the right place.
Comment by Gayle/La. on October 22, 2009 at 3:14pm
Mary I am so glad that ya'll have taken this step. I hope these "new Dr.s" will be able to get to the bottom of the problems and Sarah will be able to see again soon. My thoughts and prayers are with you all.
Comment by Nicola/De on October 22, 2009 at 2:37pm
Wishing Sarah and family all the best and will keep all in my thoughts and prayers!!
Comment by AidaCJ/NH on October 22, 2009 at 1:46pm
Mary, you surely took the right direction in taking your daughter to Mayo Clinic. She will receive the best of care. I will continue to pray for her success, and for you too so you can be strong to take all these.
Comment by Linda "Sue" Robertson, TN on October 22, 2009 at 11:54am
Nary it sounds as if you all have made a very wise decision to go to the Mayo Clinic. I pray that the doctors get to the bottom of everything that has gone on previously and that God will show them what direction to move forward in. My prayers are with all of you too!! Hugs, Linda
Comment by Carol Vickers/OH on October 22, 2009 at 11:17am
I will certainly continue to pray for Sarah. Perhaps they will have new ideas to help her. How wonderful that she has this opportunity.
Comment by Sognstitcher Lana/MN on October 22, 2009 at 11:05am
I am so happy to hear that Sarah has gone to Mayo. I also do all my doctoring there, and wouldn't have it any other way. I do hope they can help her. They will leave no stone unturned. Best wishes to all of you. You are in my prayers.
Comment by Joana Simmers/GA on October 22, 2009 at 10:55am
I will continue to pray for Sarah, her husband and all of you.
Comment by Carol Wadkins on October 22, 2009 at 10:35am
I am so glad that you could get Sarah to the Mayo clinic. It sounds like this Dr will get to the bottom of it all.
God bless you all!

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