Sarah made her first visit to the Mayo Clinic yesterday to get new opinions on her vision problems that have resulted from her tumor and brain surgery back in March. Here is what I know so far. She saw Dr. Shelly Cross, in Neurology. Both Sarah and Nate (my SIL) liked her a great deal, felt she had a great bedside manner, was very thorough, etc. She spent hours with them and has Sarah set up for a lot of consults over the next two weeks. So, Sarah will stay here with us (YAY!!!!!!!!!!) until Halloween. Nate will have to head back to Indiana on Friday to get back to work on the house addition he is building. I will take her to the rest of her appointments next week.
Dr. Cross was not pleased with the records Sarah had from her previous neuro-surgeon and neuro-opthalmologist, saying they were filled with double-talk and inconclusive results, which led her to be suspicious and question them. She sent Sarah yesterday for a specialized MRI of some sort, to focus specifically on the eyes and optic nerves and how they are all connected to the brain. And here is the kicker. The doctor wants to see if there was an error made during Sarah's surgery that is being covered up, because otherwise her vision should have returned. Oh my word. How sad. I don't know if I am more sad now or angry. My poor baby girl.
She is going to re-do the pathology on Sarah's tumor to make sure that was done correctly and has her scheduled to see a neuro-opthalmologist, a low-vision specialist and a neuro-surgeon today. The neurologist wants them to go over Sarah's case step-by-step to see what has happened to her. It certainly sounds to me like it could get interesting. She is also scheduled to see a psychologist to see how she is handling all of this emotionally, a gastroenterologist to check further into her stomach problems that have gone on for years now, and an oncologist to discuss options for the future should her tumor return and need further steps taken. (The tumor was benign, but if they see it trying to return, it would be taken care of with either radiation or additional surgery.) I can't remember who else she has to see. There may be more
As I know more, I will let you know but PLEASE keep all of this in your prayers as we move forward to see what, if anything, can be done for my darling child. And if any of you ever have serious health issues, I can't speak highly enough of the Mayo Clinic in Rochester, MN. I have gone there for years, and especially in cases like Sarah's, they will be more thorough than you can imagine. And if there are answers to be found, they won't stop until they find them for you.