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Wow...two blogs in one day! I was just settling down earlier to chat on line with Irene when my cell phone rang. It was one of the agencies I had been trying to reach. I just sent a message to Irene apologizing for cutting her off. I told her that to get an agency to return your call is major!

I've been trying to find a caregiver for myself in Ohio. I have a caregiver while I'm here in Arizona. For the past 2 years I've been handling my own medical care and not doing a very good job. By the time I get home from a doctor appointment, I've forgotten the diagnosis, his instructions, and if I hadn't gotten an appointment card, when the next appointment is scheduled. I call Barb, my caregiver in AZ, but I am unable to give her much information. So obviously she is unable to help me much.

I have called from one agency to agency to agency on aging to find a caregiver. Why is this so hard? The focus is on respite care for the caregiver. Of course, I know that. I took caregiving courses...I even co-taught caregiving course as a parish ministry assistant. I volunteered at the Beatitudes D.O.A.R. ViCap where they also have a program for respite care for the caregiver.

I was told to call the hospital patient advocate office. They only help the patients in the hospital.

OK so if I don't have a family member or friend who is not willing to be my caregiver, what am I to do? Well, I have a friend who is my caregiver...so called. She is unwilling to go to my doctor appointments and help manage my care. We won't go there. I don't want to ruin our friendship over this. How does one find a caregiver? Why has this question never been addressed? If it has been addressed, why is it so bloody hard to find the answer???

Oh my, my head is starting to hurt. I need to go quilt!

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Comment by Its Vic! on January 23, 2012 at 5:52pm

Have you thought about asking the doc to allow you to record his instructions to you?  Just a thought.

Comment by Linda Koller on January 23, 2012 at 4:40pm

Yes I'm part of a church, but being a shut-in I can miss several weeks at a time. Plus I'm gone 3 months in the winter. So after 2 years I don't know a lot of people. The senior center is across the street from me, but is mostly a social group. Everything in the phone book and so far on the internet is respite care for caregivers or going into caregiving homes. I can still live on my own. I just need some help going to doctor appointments and follow up with meds and instructions at this point.  I know parish ministry is a good starting point. I was parish ministry  prior to my accident. I found resources for our congregation. Being at the other end, however, and back in my home state, I don't have the same resources and no one seems to be able to help. I have emailed my pastor back in Ohio and I have been in communication with a nurse in the congregation. So far the nurse has not been able to help. I've talked to patient advocates office, to Ohio agency on aging, Ohio Health Dept. and so far no luck. Now if I was a caregiver and needed respite care, I'd have all the help I could possibly need. I will be taking a notebook and hopefully my hand will function to take notes. Or I will have to ask for something from the doctors.  Thank you everyone for your suggestions.

Comment by LKC on January 23, 2012 at 4:40pm

I am so sorry I do not live closer. I know what it is like to find a care giver. We have needed one for our daughter. I would call the Welcome center to agency in your area for such care. There is also web site to hire a sitter. One was started here in Ga.  How about your church or if you don't go, local church to post the need to hire. Your Medicare may also help pay for person to help you with the service. Just some ideas.

Comment by Margo in Maine on January 23, 2012 at 1:26pm

Have you been a part of a church?? or some group that would help? Also get the Dr's office to write down the detailed instructions...also is there a senior center in your area? look in your phone book...there has to be an answer...will pray for you....

Comment by Cat Lady--MO on January 23, 2012 at 12:47pm

Too bad you are not moving to my area.  Have you tried the local church?  As you know, Parish Ministry is often a good place to start, if the community has it.

Comment by Gayle/La. on January 23, 2012 at 11:55am

Linda if your friend/caregiver is unwilling to go to the Dr. appt. with you then I would ask the Dr. for a copy of his instructions to verify that you can remember what needs to be done.  I have to get my DH's info in writing or like you I forget what we need to do sometimes.  I hope you can get that problem solved soon.  It is frustrating when "the harder we try to remember, the less we can".

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