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Hi everybody!

As you may know, my daughter was diagnosed with MS last summer. She's currently doing well, but has to give herself daily injections to keep relapses at bay. Since her diagnosis, I have found out at least three of my cousins are also affected. That's the thing with MS - its not always visible, and when you see someone walking with canes, crutches or in a wheelchair, MS isn't always what comes to mind. More invisible are the cognitive problems, the "MS fog" as my quilter friend Janet calls it. Cognitive issues are her particular MS symptom. My daughter woke up one morning unable to see out of one eye. It took several days of IV steroids then a few weeks for it to clear up, but her vision is slightly worse in that eye than it was before.

 

Anywho... I'm participating in Walk MS, and would appreciate your sponsorship if you can spare a small amount to support MS research.  You can do it all online, safe & secure.

http://main.nationalmssociety.org/site/TR/Walk/CTNWalkEvents?px=253...

 

Thanks!!!

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Comment by Aili in CT on March 20, 2011 at 4:42pm

Thanks for your support!  My daughter's neurologist advises to watch new treatments for a while before jumping on the bandwagon, as often once a drug hits the market, previously unforeseen side effects come to light. For now, she's sticking to the tried-and-true, but we're always hopeful that the new research will bring about an easier way to stop relapses.

I think the most significant information comes from research into risk and prevention. Studies seem to be indicating that deficiencies in vitamin D during pregnancy and childhood may be at least partially responsible for MS as an adult. Remember, vitamin D is the "sunshine vitamin." More people who grow up in northern climates get it. Also more people born in spring, suggesting the mother's sun exposure during pregnancy is a factor. More women than men (because girls wear more clothes in the summer?) are diagnosed. We might be able to stop MS by making sure every child gets enough vitamin D. Now, vit. D is added to milk to help with calcium absorption, but its not enough. And is a supplement as good as sunshine? What about the risk of skin cancer vs. vitamin D? How much sun is enough, how much is too much? So many questions yet to be answered.

But at any rate, if you have children, give them a vitamin D supplement. They make vit. D gummies, and soft gels which are small and great to practice with teaching kids to swallow pills. If you google MS and vitamin D, dozens of informative articles come up.

Comment by Pam/NY on March 20, 2011 at 1:25pm
Count me in...great cause!
Comment by Nicola/De on March 20, 2011 at 12:50pm
Aili my daughter and I have ridden the City to Shore MS ride twice and missed last year only because my baby decided she wanted a Sept wedding and so we were tied up with her wedding. We are planning on riding this Sept doing the 75 mile leg maybe the 100, who knows have to wait till we get closer to the day of the ride. I hope your daughter is doing well with her treatments and was wondering if she has looked into this new treatment that is available for MS pt, CCSVI (chronic cerebrospinal venous insufficiency). I have read some encouraging results and know that there was a convention or something in Chicago and Italy recently.
Good luck with your walk!!
Comment by Ada Funnell on March 20, 2011 at 12:35pm
I hope all goes well and you raise hundreds of dollars..
Comment by B J Elder/WA on March 20, 2011 at 11:20am
A very worthwhile cause!  Hope you raise a lot of funds.

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