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As many of you know, my daughter Kristine has Cystic Fibrosis.  I am raising money for the Cystic Fibrosis Foundation to help with important research for assisting those with CF to live longer healthier lives.  If you don't know about CF, please at least take a look at the site to get information on it.  Knowledge is power.  CF is the most commonly inherited disease.  If you can and you want to help feel free to donate.  Please don't feel obligated as just having more people aware is important to me.  Thank you for letting me share.  There is a link, on my page here at QWU, to the CFF.org Great Strides Walk where you can find my page.  My Beautiful daughter will be 18 in September and the advances they have made with treatment for CF have helped her to live a mostly healthy life so far.  My only hope is they continue to make advances that will help keep her healthy and allow her to grow old.  :-)  http://www.cff.org/great_strides/dsp_donationPage.cfm?registeringwa... 

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Comment by Michelle K on May 15, 2013 at 3:48am

Thank you all for taking the time to read my post.  Pam I am going to  check in on Percussionaire.  I may have questions :-)  

Comment by Prairie Quilter Jan/NE on May 13, 2013 at 5:29am

Thanks for sharing, Michelle.  Encouraging and educating folks about those things so close to our hearts is important.

Comment by AidaCJ/NH on May 12, 2013 at 6:16pm

I have actively supported the CF chapter here in NH as I have several friends whose children suffer from CF, and participate in  their fundraising activities whenever I can. 

Like you, I'm hopeful that a cure will be found to help those who have CF.

Comment by Ally Bryant on May 11, 2013 at 1:26pm

Pam this is very interesting, a friend of mine with Copd suffers all the time with pneumonia and if this was on the market at a reasonable price or rentable I'm sure a like of people would go for it.

Comment by Pam/NY on May 11, 2013 at 5:56am

My husband is on the board of Percussionaire...they are revising the company at present. Percussionaire is a machine that we feel will revolutionize CF treatments along with other lung diseases. The problem is educating the doctors and changing habits of old treatments. Google this company. I used this when I had pneumonia this winter. It pushes everything from the bottom of your lungs out. I was cured in three days without antibiotics. The machine is $13,000. We are trying to get the insurances to cover treatments at home and rent the machines like you would oxygen, etc. Again, it is hard to find a doctor that will take the time to learn the simple use of it. Believe me...if I had a child or family member with CF, I would search out a doctor that would. This machine would eliminate the use of those vibrating vests, etc.

Comment by Irene Gallway on May 11, 2013 at 5:32am

Very good cause.  My cousin had two children, both with CF.  The boy died a few years ago.  He was in his 20's.  He worked, between trips to the hospital @ an automobile parts store.  The owner was so good to him. Letting him work when he could.   He never complained,  and was always laughing. 

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