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Hey to all, I don't know why I didn't think of this earlier, but if you are interested here is a link to support Great Strides.  This is a fundraiser for Cystic Fibrosis Research.  My daughter Has Cystic Fibrosis and for those of you who don't know what it is, it impacts every aspect of the patients life and the lives of family.  My daughter, Kristine, who is in the picture on the link provided doesn't look like there is anything different about her.  She looks like a normal teen.  However she spends hours in the morning and at night doing a total of 5 breathing treatments and 2 vest, Percussive therapy, a day.  Each treatment takes between 15 and 30 minutes and her vest takes 20 minutes a pop.  This is something she HAS to d every day in order to keep her lungs healty.  So far she has been doing Great and we got a great report Tuesday  from the 2 appointments we went to.  She is still just pre-diabetic so that is great news. 

Kristine has done so much better than so many with Cystic Fibrosis (CF).  I hope that one day there will be a cure, but for now there are only treatments, so Please take a minute to look at the site.  If you would like to donate, great.  I will be walking on Saturday, rain or shine...... If you don't have the money or don't care to donate, you can at least get more information about the disease that effects so many.  It is the most commonly inherited genetic disease.  Thank you to all you wonderful people on this site.  I love being here and sharing with you all.  I wished I had sent this sooner but it just didn't cross my mind.    Here is the link

Kindest Regards,

Michelle K

 

http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=7271&a...

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Comment by AidaCJ/NH on May 13, 2011 at 8:30am

Hi Michelle,

I have some friends here in NH whose kids also have CF.  The charter here in NH also sponsors walks and even a gala dinner to raise funds.

I will be thinking of you and your daughter.

Comment by Prairie Quilter Jan/NE on May 13, 2011 at 5:24am
Thanks for sharing the link, Michelle.  Supporting one another is so important. 
Comment by Cottonwood Quilter on May 13, 2011 at 5:21am

Just happened on your post and am very interested,  My DH and I had a kid working for us a few years ago who is now married with two children, and both have CF.  they are fortunate to live in the Denver, CO area, so medical assistance is very near.  I will check it out, least someone could do is send a quilt or two to the organization for one of the kids,

Thanks again,

Linda

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